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Who is funding the RareCare study?
The project is funded by the National Institute for Health care research (NIHR).
Who are the RareCare team?
The RareCare team is a collaboration of organisations working together with the rare disease community.
How will the rare disease community be involved?
RareCare will build on engagement with the rare disease community by implementing a Patient and Public Involvement, Engagement (PPIE) strategy that ensures a diverse and authentic representation of the 3.5 million individuals living with rare diseases in the UK.
How do I get involved?
Further opportunities to be involved in this research will be announced on the RareCare website. These could include delivering research, being a peer researcher, participating in research, being interviewed, taking part in focus groups and doing surveys.
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